I have known Miss Jenna and her mother Lisa for two years now. Jenna's ROHHAD has left her unable to talk after suffering through her fourth seizure. The above photo was Jenna and her brother during their Disney Make-A-Wish trip.
Jenna spent New Year's and her birthday in the PICU this year after coming down with Repiratory Syncytial Virus (RSV). RSV is very dangerous for those already suffering respiratory problems as severe as Jenna's. RSV can not be treated with an antibiotic and requires more oxygen be given.
I just love Jenna. She is having fun here with her brother - and although flat affect is a trait of ROHHAD you can still see the smile in her eyes.Last Summer I shared a photo of Jenna with everyone...she had taken a trip to the beach. I am so overjoyed when I see these little ones out there enjoying life. They are so much stronger than I can ever imagine to be.
Miss Jenna just a couple weeks ago. She is doing so well and with Spring around the corner we hope to see more beautiful pictures of Jenna.Thank you to Lisa for sharing your beautiful baby with all of us. We just can't get enough of her! :)
Love to all of you.
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