Denika - ROHHAD and GANGLIONEURBLASTOMA CANCER

We first met Miss Denika at the end of summer last year. I spoke with her mom, Trina, quite a bit and discovered Denika was exactly like Miss Haven. She had just had surgery to remove her Ganglioneuroblastoma Tumor in the abdomen and her doctors were now trying to figure out ROHHAD.

Denika was flown from her hospital in Newfoundland to Toronto for evaluation.

Here is her private plane. Once evaluated in Toronto I was amazed to receive an email from her Endocrinologist asking for advise and info on what Haven had been doing. I immediately sent her an email back with a short synopsis of our treatments and the plan. Then I also encouraged her to speak with our doctors and discuss the best options for Denika. The next day our doctors called to ask if it was ok to speak to them on behalf of Haven. ABSOLUTELY. Next thing I knew Denika would be getting a port in place and would begin IVIG treatments.

Here is Miss Denika at her birthday party. She is so beautiful. She has been doing IVIG for a few months now. I keep in touch with her mom as best as I can. Life gets extremely hectic when you're running back and forth to an Oncology office for treatments. But Denika is doing great and I love seeing her photos.

We love you Trina and Denika.....

Jessica Magnus --- Ganglioneuroblastoma Cancer and Progressive Neuromuscular Scoliosis

GANGLIONEUROBLASTOMA stage 3 and progressive neuromuscular scoliosis of 59 degrees

Jessica was born on September 18th, 2001. In December 2005, Jessica was diagnosed with Stage 3 Ganglioneuroblastoma Cancer - both malignant and benign tumor that was taking up most of her chest and wrapped around her spine.

Jessica's x-rays - showing curve of spine and Ganglioneuroblastoma Tumor


Today Jessica continues her fight for life. She wears her new Cheneau brace because doctors were only able to remove 25% of her tumor and during that surgery it caused a major curve in her spine. If her tumor continues to grow it could crush her spinal cord causing her to become paralyzed. Jessie has been all over Europe visiting doctors and misses a lot of school due to her cancer and scoliosis. Even with missing so much she has done very well in both the UK and Czech Republic!

Jessica is trying to get to the US to meet with experts here. Please visit her sites and learn about her. I became friends with her mother, Stana, immediately after Haven was diagnosed. We have remained in close contact since. I am lucky to have these two beauties in my life.

Please visit Jessica's site by clicking her photos or HERE! We love you Jessie and Stana!

Home from SickKids Hospital

Photo of Denika during one of her tests in Toronto

We're very happy that Denika is home for the holidays. They found a Ganglioneuroblastoma tumor in her abdomen and later found her to have ROHHAD Sydrome. She was flown from her home in Newfoundland to Toronto to be seen by the doctors there. After many tests and consulting with Haven's doctors Denika returned home at the very end of November.

MERRY CHRISTMAS DENIKA!!!! We are so happy you are back home!