Friday, January 7, 2011

Ariel -- One of our newest friends


Ariel is a 16 year old girl with Static Encephalopathy,Intractable Epilepsy, IBS and Chronic Tenosynovitis and is significantly cognitively impaired. She loves animals of all kinds and loves people to stop by and say hi,so please do.

From her mom - Linn:

Ariel was born 3 weeks premature ,which none of us thought would be a big deal,but boy were we wrong.After birth she immediately started turning blue and they spent 8 hours trying to stabilize her to transport to another hospital.We later learned she had respritory distress syndrome.We were told there may be all sorts of medical and physical problems for her because of this and that she would be in NICU for 4 months!

She started having a lot of stomach issues at about the age of 8 and after several endoscopies and numerous tests she was diagnosed with IBS. One Saturday night she collapsed on the floor in pain and her legs seemed to be stiff. We took her to the doctors and they admitted her to the hospital. The next day after an MRI they said she had osteomyelitis in the spine (infection of the bone) . They put a picc line in her and she was pumped with antibiotics for 4 weeks and then given 2 weeks of oral ones. She then developed colitis from the antibiotics and this seems to be where the story begins medically for her.

In June 2009, Ariel went into Status Elepticus and was in PICU and the hospital for a week. Since then she has been in and out of Status several times. She also got a Make A Wish trip to DisneyWorld. She also has 4 brothers Nick 22,Bret 21,and an MP in The Army serving in Iraq, Michael 17 and Daniel 18, who also has a caringbridge site. Please say prayers for Ariel and sign her guestbook to give her support.God bless,Linn


Please visit ARIEL: HERE

No comments:

Post a Comment